Friday, September 9, 2011

15 Months

If this post is a little choppy or sounds like I have my mind on other things, I do. There is a huge spider lurking around my computer. I tried twice to kill it but this thing is the Jason Bourne of spiders. I just know that the next time it turns up, it's going to be crawling up my sleeve or somewhere equally mortifying. So I have one eye on  the screen and one eye looking for the spider. Anyway, I decided it's about time for a formal update. Lewis just had his 15 month appointment yesterday and here are his stats:

Weight: 22 lbs
Height: 29 1/4 inches
Head Circumference: 49 cm

He's gaining weight like a champ... keeps moving up those percentiles. He's become very picky with food lately and doctor told me he's gaining well enough that it's safe for him to go hungry for a meal if he won't eat what's given to him. He's refusing things that I know taste good and I know he has enjoyed in the past... it's getting ridiculous. So I'm going to try to nip it in the bud. We'll see how it goes...

His height is on the small side, but he's on the charts, so I'm happy!

His head circumference has always been in the 70th percentile and has recently jumped to the 90th. I had noticed it was steadily growing from the few times I measured it at home. A jump in head circumference in Lewis could mean that his shunt is not working properly. Lewis's soft spot is open and when you feel it, it's clear that the shunt is functioning. There are times when it's soft, and times when it's sunken, but it's NEVER full. The doctor asked if we had a family history of big heads. Um... YES. So it looks like Lewis is growing his Miller-sized head. Overall, the doctor is very happy with his development!

Lewis has a bunch of appointments coming up this month. He sees Urology, Orthopedics, and has a full clinic scheduled (although since we're seeing everyone anyway, I think I may cancel the clinic appointment). In November he's supposed to have his follow up MRI to check the syrinx they found on his spine. Please keep Lewis in your prayers on this. We'd like to avoid surgery if we can and are praying that the syrinx will go away on it's own.

Therapy is going very well! We're going twice a week until the end of the year (probably with a couple breaks here and there). This week Rene was working on Lewis's right hip. His right leg is his stronger leg, but because of that, his hip is tight so she worked to get his hip to relax and loosen up. When we got home yesterday, I put Lewis down for a nap and watched him on the video monitor as he squirmed around in his bed instead of napping. While squirming, I saw him lift his right leg up, grab it, and bring his foot all the way to his mouth. That hip has ALWAYS been too tight to reach up that far! I was pretty excited to see him do that! All this without doing any stretching... pretty amazing!

We've also been working on some things with his arms but I'm hoping to get a video of it soon, so I'll save that for another time. He's making great progress. More importantly, though, he's being a good sport about it and he's working hard. I want that to be the focus in years to come. Lewis may or may not do certain things and there will be a point where he can't progress any further. I want him to know that it's the hard work and good attitude that are important, not the milestones or achievements. I'm starting now because I think he understands a lot more than I give him credit for! :)

Hiding... as usual... from anyone and everyone! 

P.S. The spider is still on the loose...

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