Thursday, November 18, 2010

Crazy Day... and not in a good way

I thought this week was going to be an easy one... only one appointment with Lewis's pediatrician. It didn't quite turn out how I had planned though. At the appointment we found out Lewis had only gained 3 oz in a month. Plus, he had some blood in his stool. All of this is leading us to believe he may have a problem with dairy products that are coming through my breastmilk. So.... I had to start a dairy free diet. It will be quite an adjustment. Right now I'm choking down some coffee without my beloved cream. I'm telling you, the world is grey without cheese! hahaha I'll be fine! We have to go back to the pediatrician in a week to see how Lewis's weight is doing.

I mentioned in an earlier post that Lewis slept a lot on Monday to make up for lost sleep over the weekend. Well that sleeping continued on until Wednesday and I started to get concerned. Then that evening he threw up a couple times and he never spits up so I called the on-call neurosurgeon. I don't think he was a pediatric neurosurgeon because all he told me was, well if his fontanel is fine, he's probably ok. PROBABLY?? A few minutes later Lewis threw up a lot so we went ahead and brought him to the ER in Grand Rapids. We called the ER in Muskegon first to see if they had a device to reprogram the type of shunt that Lewis has... I'm pretty sure they had no idea what I was talking about so we made the drive to GR. We spent the evening in the ER and let me tell you, after my own experience in the ER, I am so thankful they separate the kids from the adults. What a different place! Lewis flirted with all the nurses and doctors and thought we were on an exciting adventure. He got a couple X-Rays of the shunt to make sure there were no kinks in the tubing. He also got a CT scan to check his ventricles. Seeing that little boy in that huge CT scanner was one of the cutest things I have ever seen. I wish I had had my camera. He was very wiggly so Coleman had to hold his little head in place. So cute! Everything came back normal. YES!!! So they told us it's probably just a stomach bug and it may last a few more days. I am so thankful! But at what point am I going to know the difference? I certainly don't want him to have to get a CT scan every single time he gets sick! I guess we'll cross that bridge when we come to it.

Thank you for all your prayers. God is awesome and his ways are higher than mine. While I'm interested in being comfortable and avoiding difficult situations, he's interested in making me a stronger and better person. I choose to be thankful for that, even when I don't feel like it.

Anyway, hope you're all having a better week than us... I'm off to go snuggle with my sleepy baby ;)


Tuesday, November 16, 2010


I've been looking forward to this day for weeks now... the day we get Lewis's AFOs! Aren't they adorable?! They look enormous... way bigger than his feet. They're big so they can be adjusted to fit him as he grows and we can maybe go a few months without getting new ones.

The AFOs should accomplish a couple things. First, as Lewis's muscles are getting stronger, they are pulling his feet into weird positions. That's not a big deal, but left alone, it could be a problem in the future. The AFOs help to put his feet in a neutral position so that they'll develop normally. Second, Lewis has very little, if any, strength in his ankles. The AFOs support his ankles so that he'll eventually be able to stand on his own. Again, not really an issue now, but we are doing a little standing with him in therapy, so the AFOs should help!

Lewis thinks they're pretty cool and is already messing with them a lot... I can just see it a few months from now when he's ripping them off!

Remember to check out :)

Monday, November 15, 2010

Baby Dedication

This past weekend was action packed. It was so exciting for Lewis that he got very little sleep and has taken VERY long naps today to make up for it! Lewis was dedicated at our church on Sunday and our families were in town for the weekend to see it. It was a lot of fun seeing everyone and we're excited to see them all again soon for Thanksgiving. Here are a few pictures from the weekend. 

Also check out our new website for a way you can support Lewis and win a cool prize :)

Wednesday, November 10, 2010

My boys

Ok so I realize I put up too many pictures of my baby and my dog. But they're my babies and I just love seeing them together! Gauge is great around Lewis. Probably because we've always kinds of treated him like an obnoxious 5 year old would... but he loves it, I swear! At first Gauge kind of ignored Lewis but here's an example of how he's starting to like him.

Gauge likes to come over and sit by Lewis... sometimes almost on top of him... 

Gauge gets more comfortable and Lewis starts eating Gauge's fur.... just like he tries to do with everything else he can get his hands on. Of course in the process he pokes Gauge in the eyeball and Gauge just lays there and takes it! I love my boys :)

Wednesday, November 3, 2010

Rolling Over

I FINALLY got a video of Lewis rolling over. It's not the best he's ever done it but at least I got it! 
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