Wednesday, April 27, 2011

Upcoming Events...

A couple new things to report. First of all, on May 9 Lewis goes in a for a baseline brain/spine MRI. Lewis's neurosurgeon would just like to see what his brain and spine look like while he's healthy and happy so that he'll have something with which to compare future MRIs. He'll need to be sedated for the procedure and won't be able to eat or drink that morning until the procedure. It shouldn't be a big deal but it's definitely not something I'm looking forward to. We'd appreciate your prayers. 

On to more exciting news, Lewis is showing great progress with his Feldenkrais therapy. He's currently going once a week. His therapist thinks that he would really benefit from a more intense series of lessons so next week we will go for four days in a row. After that we'll probably take a week off and go back for another four lessons. I'm so excited to see where this takes Lewis! A lot of trips to Grand Rapids, perfectly timed with the climbing gas prices, but it will be worth it! I can't wait to update you all after next week.

Wednesday, April 13, 2011

Making Progress

Well we've gone to the Feldenkrais therapy three times now and I. LOVE. IT. It's really exciting to see the changes Lewis has made in such a short time. The changes are very subtle but they are definitely there. Today we went to the CLC for the first time since he started the therapy. Lewis's conductor was amazed at how much he's changed in just two weeks. She kept saying, "Look at his back! Look how good he looks. He looks amazing! I can't believe how much he's improved!" So I finally broke the news to her that Lewis had been getting Feldenkrais therapy. She said that Peto (the man that founded conductive education) and Feldenkrais actually worked together. In fact, Peto even mentions Feldenkrais in his book. So the two philosophies work really well together. She also explained how we can effectively use the two therapies together. Feldenkrais connects Lewis's brain with all the individual parts of his body and muscles. Conductive Ed shows Lewis what he can DO with those new connections. I think that's critical for Lewis since he wouldn't necessarily be able to do that by himself like a typical kid. He just needs a little extra direction and practice. I am so excited to see where this takes Lewis!

 Lewis's Feldenkrais therapist doesn't think he has much awareness of his knees. So the goal is to get him to see his knees, touch them, see what they feel like, how they bend, etc. So I thought I'd make them a little more interesting by drawing smiley faces on them. He loved it! Stickers worked well too. 

What is that at the end of my leg? 

I have two of them?!

How did I not know these were here?


P.S. Our insurance is not fond of either of these therapies, but thanks to so many generous friends and family members, we're able to afford to pay out-of-pocket for Lewis to get the therapy that he needs. We're so grateful!
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